the fact that a cancer patient is prescribed a litany of drugs, should you ask for them, that can be the cause of a swift and painless death given the situation is both funny, haha and not so funny, side eye.
At a moments notice I could choose to end this whole charade, it isn't just about the big C though I must say my fuck me diagnosis doesn't leave me with dreams of a beautiful future. this illness takes a lot of things, confidence, your trust in your body, your belief in friendships and relationships, your belief in yourself but it doesn't take everything. It leaves you with bills, adds more fun ones to your plate, it leaves you wondering where and how you're going to provide for yourself given your current state of being, it leaves you with a lot of worry and it keeps on piling them on.
You learn yoga, don't do it because, well, you've had enough of life. You try to meditate but panic takes over and some days when you, well not you but I, get real zen like, you think of all those pills sitting in a draw just waiting to stop all the bullshit. Don't call me, don't text me, don't worry about me because of THIS blog. Did you really think I didn't think of this? I lay awake at night and wonder why do I keep living? to hear more fucking bad news because no matter what the news folks, I got fuck me cancer and ain't no help me cures. But besides cancer, I'm not realistically hoping on love, kids, no, my family, I mean we're close but trust they'll get over it, so like everything else I'm living, walking around and breathing because I'm still holding out hope that a change is gonna come.
The last time I hoped for change, I got disease. So forgive me if there are days when I'm less than optimistic for the future. I had a rough weekend, in my head, in between my good days there's a host of shitty days, scary days and days when I just don't want to hang with you guys anymore. I love you all but we occupy different realities, I pray for a different outcome, I hope for a different outcome but I know it'll never be what it could have been and all in all y'all, I don't know what I'm fighting for.
Monday, September 29, 2014
Tuesday, September 23, 2014
hot doctors...
After my girlfriend went home, after I text my sisters the latest update, after I spoke to my mom on the phone. It was close to four am and I was dead tired, cold and listening to sounds that made me glad curtains separated the sight. A fever had gotten me here and I started to feel sorry for myself, angry at myself. Why isn't there anyone here to hold your hand? What is wrong with you why could you compromise like everyone else? Why aren't you eating more salads? Hope my mom doesn't find my bong when she has to go into my apt? My body has finally had enough SHUT THE FUCK UP!!! I AM TIRED!!!
Doogie Howser, staring for too long doctor: You can take the mask off your white blood cell count is good. We're going to take an x-ray. and then we'll probably admit you. Breath in. Deep Breaths. Sounds good. How are you dealing with the prognosis?
Scrubs: would you like another blanket?
Jewish Nurse: i was told to give you the antibiotic. we don't want to go through the port...
Ire escort: time for the x-ray ma;am
Bald black shaft looking dude: wrap your arms around it like your giving it a hug...closer
Irie escort: no madd a wha happn' trust in Jesus. stay blessed
Seriously praying for her bunk mate: NURSE! I need my pain medicine..I'm in so much pain...why can't they just give me the surgery?! we were on the way and then we got homeless!!! I'M IN SO MUCH PAIN!! (this was my bunk mate for fucking real tho)
African Nurse: I have to get your blood. don't worry God will take care of you. You have that attitude you gonna get out of this.
Seriously praying for her bunk mate: OH MY GOD! the pain!
Hot Indian Doctor 1: we spoke on the phone
Hot Indian Doctor 2: says you're a writer, what do you write?
Hot Indian Doctor 2: *sandwiching my hand between his two* everything looks good, a little more testing, the doctors need to talk and then we can get you out of here by mid afternoon, cool?
Hot Indian Scrub: Everything looks good, nurse should come by with some discharge papers, continue taking your prescribed meds, no reason to hold you longer, isn't that great?
Yup! that's awesome!
Nurse: lets get these papers signed quick, its lunch, ya know?
Totally get it
Nurse: it was great serving you, have a great one.
Wednesday, September 17, 2014
before treatment...
On nights like this nothing makes the thoughts go away as far as I need them to go. I'm up when I should be asleep. I have treatment tomorrow and I thought I wasn't nervous, thought the port made it easier but I'm finding that it does and it doesn't .
Treatment, a reminder of the reality of my life. I'm thinking about work, money, how the fuck am I going to pay all these damn bills?! I have to put on a brave face and go through the process tomorrow. The poking and the prodding, the cold room, the clinical smell, the stagnant air, the lifeless paint, the devoid doctors and hopeful smiles, that's my birds eye view of treatment.
Louis CK isn't helping, this glass of red wine isn't helping and the trees, they ain't helping. I could crawl into bed and take the Ambien the doctor prescribed, I can't sleep, didn't I mention. All this sounds depressing or not happy but it is neither of those things, it's just my life. God willing I'll wake up tomorrow, I'll do my breath work, I'll pray and more than likely cry before I get into the shower, put on my red lips, create some eyebrows and go to treatment.
I'm trying not to cry, it feels like I'm always trying not to cry. I had to be honest tonight, maybe saying all this will help me sleep, sleep, I can't sleep.
Treatment, a reminder of the reality of my life. I'm thinking about work, money, how the fuck am I going to pay all these damn bills?! I have to put on a brave face and go through the process tomorrow. The poking and the prodding, the cold room, the clinical smell, the stagnant air, the lifeless paint, the devoid doctors and hopeful smiles, that's my birds eye view of treatment.
Louis CK isn't helping, this glass of red wine isn't helping and the trees, they ain't helping. I could crawl into bed and take the Ambien the doctor prescribed, I can't sleep, didn't I mention. All this sounds depressing or not happy but it is neither of those things, it's just my life. God willing I'll wake up tomorrow, I'll do my breath work, I'll pray and more than likely cry before I get into the shower, put on my red lips, create some eyebrows and go to treatment.
I'm trying not to cry, it feels like I'm always trying not to cry. I had to be honest tonight, maybe saying all this will help me sleep, sleep, I can't sleep.
Monday, September 15, 2014
this love thing...
When all this first started, I knew for sure the one thing I could shelve, the one feeling I could do away with, was that love thing. I have the love of my friends, I have the love of my family but not that love that nuzzles into the side of your neck at 3am. A love that needn't make a sound but you hear it loud and clear, a cliche love, everything in my mind that isn't everything that I am is a cliche nowadays. But yeah, I thought I was going to lock my heart and my vagina in a box only to return when I'm well...I really fucking thought this?!!
Well ladies and a very few gents, I can't, I won't but going out here trying to date with this fucking thing is like, holy shit, as if I didn't have enough shit to spring on a dude! But I can't ignore it, I can't lock myself away. Life is beautiful, almost amplified at times and so are all of my feelings, but my soliloquy doesn't change the way that I feel about myself. I feel good most days, right, yeah. However, the bald head, the long present scar, the port, the port scar, it doesn't help in the self esteem department. If you're feeling sorry for me, go ahead, I can't tell you what to do with your feelings but this isn't my intent. I still get hit on by men, boys too and it isn't so much about getting hit on or copping a feel off of some really dense but shapely man at a bar, as it is, who wants to deal with all of this? Doctors visits, Nuelasta days, emotional mayhem and a very uncertain future on top of all the aforementioned stuff and I'm still kind of an asshole.
But nothing has changed, I am all the things I was before and a little bit better, better in all those cliche ways that I always thought would be better for me. But I'm not banking on it, I'm hopeful but I always ask myself the same question, if the shoe was on the other foot, would I do it? Oh Love is indeed splendid and a pain in my ass right now.
Well ladies and a very few gents, I can't, I won't but going out here trying to date with this fucking thing is like, holy shit, as if I didn't have enough shit to spring on a dude! But I can't ignore it, I can't lock myself away. Life is beautiful, almost amplified at times and so are all of my feelings, but my soliloquy doesn't change the way that I feel about myself. I feel good most days, right, yeah. However, the bald head, the long present scar, the port, the port scar, it doesn't help in the self esteem department. If you're feeling sorry for me, go ahead, I can't tell you what to do with your feelings but this isn't my intent. I still get hit on by men, boys too and it isn't so much about getting hit on or copping a feel off of some really dense but shapely man at a bar, as it is, who wants to deal with all of this? Doctors visits, Nuelasta days, emotional mayhem and a very uncertain future on top of all the aforementioned stuff and I'm still kind of an asshole.
But nothing has changed, I am all the things I was before and a little bit better, better in all those cliche ways that I always thought would be better for me. But I'm not banking on it, I'm hopeful but I always ask myself the same question, if the shoe was on the other foot, would I do it? Oh Love is indeed splendid and a pain in my ass right now.
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